Advocacy Resources
Social Support Channels
TalkingDiabetes encourages you to explore social media channels to expand your diabetes support community online. Here we offer some suggestions to help you find, for example, a Facebook Group that suits your interests.
A Facebook Group is a place for group communication and for people to share their common interests and express their opinion. They let people come together around a common cause, issue, or activity to organize, express objectives, discuss issues, post photos, and share related content.
TalkingDiabetes is not affiliated with these private Facebook Groups – please follow the TalkingDiabetes Facebook page here:
“Diabetes Motion”
Join this public Facebook group at: https://www.facebook.com/groups/793360004046784/
Description: This group is for anyone with any type of diabetes or prediabetes (or anyone supporting or working with people with these conditions) to share triumphs, challenges, tips, advice, and other comments about keeping your body in motion with diabetes.
“Diabetes Strong Community”
Join this private Facebook group at https://www.facebook.com/groups/FitWithDiabetesChallenge/
Description: In this group, members share knowledge about anything related to diabetes, exercise, and healthy nutrition, and support each other in reaching health and diabetes goals.
“Diabetic Living and Recipes”
Join this private Facebook group at https://www.facebook.com/groups/275031866010614/
Description: This group strives to help members with information and literature shared from reputable sources. All members have, or a family member or friend has, diabetes. There are many files with recipes and links to important healthful diabetes information.
“Estudiabetes Spanish Language Community”
Sigue esta página de Facebook en (Follow this Facebook page at) https://www.facebook.com/dhfespanol/
Descripción: Este grupo es para Estudiabetes.org – Somos una fundación sin fines de lucro 501(c)3, que busca unir las personas tocadas por la diabetes para generar cambios y aportes positivos a su salud.
Description: This group is for Estudiabetes.org – We are a 501 (c) 3 non-profit foundation that seeks to unite people touched by diabetes to generate changes and positive contributions to their health.
“PEP Squad”
Join this private Facebook group at https://www.facebook.com/groups/PEPsquadDRI/
Description: Created by the Diabetes Research Institute Foundation, PEP Squad (Parents Empowering Parents) is a closed group for parents of children of all ages with the autoimmune disease type 1 diabetes. Not just for parents, the PEP Squad has grown to include grandparents, relatives, and other caregivers navigating through the disease.
Associations & Networks
While not affiliated with these organizations, TalkingDiabetes offers this collection of associations and networks to help diabetes patients find relevant online resources and information.
The American Diabetes Association (ADA)
The ADA has a mission to prevent and cure diabetes and to improve the lives of all people affected by diabetes. The organization seeks to lead the fight against the deadly consequences of diabetes and fight for those affected by diabetes. They fund research to prevent, cure, and manage diabetes, deliver services to hundreds of communities, provide objective and credible information, and give voice to those denied their rights because of diabetes.
Beyond Type 1: The Diabetes Online Community (DOC)
The DOC is a nonprofit organization changing what it means to live with diabetes. Through platforms, programs, resources, and grants, it is uniting the global diabetes community and providing solutions to improve lives today. Founded in 2015 with a focus on education, advocacy and the path to a cure for Type 1 diabetes, Beyond Type 1 has grown to also include programs for those with Type 2 diabetes. A new model of philanthropy, Beyond Type 1 aims to change what it means to live with chronic illness.
Children With Diabetes (CWD)
Children with Diabetes is an Ohio-based 501(c)(3) non-profit organization dedicated to providing education and support to families living with type 1 diabetes. CWD focuses on care today so we are ready for a cure tomorrow. As an advocate and global resource, they provide support, education and inspiration to empower families and all people living with diabetes to enjoy healthy, enriched lives.
The College Diabetes Network (CDN)
https://collegediabetesnetwork.org/
Founded in 2009 by a college student with Type1 who felt isolated and struggled to manage her diabetes, The College Diabetes Network (CDN) is a 501(c)(3) non-profit organization whose mission is singularly focused on providing young adults with T1D the peer connections they value, and expert resources they need, to successfully manage the challenging transition to independence at college and beyond.
Diabetes Sisters
DiabetesSisters offers a range of education and support services to help women of all ages with all types of diabetes live healthier, fuller lives. Through DiabetesSisters opportunities for peer support and education, women form a special bond and can freely share information, helpful tips, and stories of hope.
Diabetes Patient Advocacy Coalition (DPAC)
The Diabetes Patient Advocacy Coalition is an alliance of people with diabetes, caregivers, patient advocates, health professionals, diabetes organizations, and companies working collaboratively to promote and support public policy initiatives to improve the health of people with diabetes. DPAC seeks to ensure the safety and quality of medications, devices, and services; and access to care for all 30.3 million Americans with diabetes.
Glu
T1D Exchange Glu is an online community for individuals living with type 1 diabetes to connect, obtain information, and share data. At Glu, you can drive needed research by answering a question a day about life with type 1 diabetes; read about the latest news on type 1 diabetes treatments and devices; and connect with and learn from others who live with type 1 diabetes.
Juvenile Diabetes Foundation International, also JDRF
JDRF is the leading global organization funding type 1 diabetes (T1D) research. They are committed to improving lives today and tomorrow by accelerating life-changing breakthroughs to cure, prevent, and treat T1D and its complications.
National Diabetes Volunteer Leadership Council (NDVLC)
ndvlc.org
The NDVLC is composed of individuals who have previously served in a volunteer leadership position of a national diabetes-related health organization. As a result of their volunteer activities, they have gained experience and expertise in the field of diabetes and utilize this knowledge to carry out the mission of the NDVLC: communicating with influential individuals and organizations throughout the country; raising awareness through education; and advocating for federal, state, and global diabetes-related initiatives.